In the case of many rare disorders, ecosystem players are in search of more detailed knowledge about patients’ experiences from living with the disease from day to day and about their experience of the healthcare process. Common to all these assignments, we deliver a model of the healthcare and life path, identifying priority needs to be addressed at points along that path. We pay particular attention to learning about natural patient and caregiver tropisms in order to account for the specific needs according to each tropism. The patient may progress from one tropism to another. The healthcare professionals are interested in the approach and have taken up identifying the tropisms of each of their patients in order to offer them the services best suited to their needs. Fields of study: spinal muscular atrophy, idiopathic pulmonary fibrosis, metastatic melanoma, metastatic prostate cancer, short bowel syndrome, moderate to severe migraines.
Reporting the patient’s experience, from their healthcare and life path within their ecosystem
Lilly, Roche, Novartis - ethnographic studies x okoni